Key interests in ELF / ERS Patient Networking Day, and in our breakout sessions at the GAAPP Global Respiratory Summit 2019, Madrid, were focused on how we can bring these resources to patients in their own care plans: including physiotherapy, more active lifestyles or offering social support more readily to alleviate related issues such as isolation [...]
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Giving Tuesday 2019 Ever since Arran was born he have lived with a rare disease called Alpha-1. This experience has forced him to face every challenge head on to be able to manage his condition and continue living my dreams. The LovexAir Foundation helps not only Arran but also their great community. Arran identifies with [...]
Arran Strong, the new ambassador of HappyAir Project introduces himself and explain why he supports HappyAir and his battle with a rare chronic respiratory disease. Arran is a surfer aiming to a professional soon and he gives us a positive message to encourage people to follow their dreams and live a healthy life.
Results of the study confirm that using the m-health Happyair program improves adherence in patients with COPD and their perception about following the program is very positive. Healthcare professionals demonstrate their satisfaction and are also positive about the benefits for patients enrolled in the program. COPD, Chronic Pulmonary Obstructive Disease affects more than 2 million [...]
Our HappyAir Ambassador, Arran Strong, is sharing stories with Alphas around the world. In this episode, Karen Skalvöll tells us her story about challenging lung disease and Alpha-1. Come and meet them both in the upcoming Alpha-1 Global Congress, 3-6 April, 2019 in Dubrovnik, Croatia.
At Lovexair we are proud that Arran is one of our HappyAir ambassadors! On May, 24 in Ericeira, Portugal, Arran and Emilie Uttrup shared with the youth their history of personal improvement. The talk was very well received and was supported by Boardriders Ericeira. From Lovexair we thank you for your solidarity in telling your story and helping [...]
HIMSSEurope 2018 & Health 2.0, Sitges, Barcelona, May 27-29, gave all stakeholders the opportunity to share their views on how we engage better as citizens in this age of digital health and the incredible transformation taking place in healthcare and life sciences.
HappyAir Smart Community at eHealth Summit Singapore. HIMSS APAC and Health 2.0 We are continuing to work to offer our digital health resources in regions with a dynamic approach to the future of healthcare. The past April 24th, Víctor Gascón, Global Transformation Officer, pitched for Lovexair Foundation in Singapore during the live demo showcasing in [...]
Alpha-1 Global Congress, Croatia 3-6 April. The young patient’s voice with our HappyAir Ambassador Arran Strong from Lovexair was a hit. How great it is for young people to begin to speak out about how they continue to live their lives and build their dreams, even when they have a rare disease which affects lung, [...]
Shane Fitch (@belivedomore) is the founder and director of Lovexair, a foundation that supports people affected by chronic and rare respiratory diseases. After ten years of working in digital health she has developed together with a multidisciplinary team, a digital self-care program for all types of respiratory patients. Fitch is involved in various international networks to help accelerate [...]