Patient organizations are important allies in promoting and collaborating on projects that streamline these processes and in contributing to or participating in this environment in the digital age.

We are responsible for representing groups to:

  • Provide resources that facilitate understanding and knowledge about these issues in the community.
  • Take care of us, as a key and trusted manager of:
    • Improve the exchange of information or data
    • Identify and manage resources and training to provide access to better comprehensive care plans as a reward for the participating patient
    • Increase patient participation and information to achieve better use of healthcare resources and make them affordable and economically viable for all affected people, wherever they are.
    • Support and participate in Research and Development from our organization and with our resources contribute to the future of the community of affected people, Support healthcare professionals, researchers and collaborate in a network with industry, IT companies and the institutions involved.

 HappyAir, the Foundation's solution lovexair for pathologiesas respiratory cróunique

Happyair is a Smart Community for the comprehensive care of people with chronic or rare respiratory diseases, such as asthma, COPD or Alpha-1.

Our community offers online and offline training, digital health resources and support to patients, their families and caregivers, and healthcare professionals.

They can all connect through a platform that will improve the health and well-being of patients, learn to manage self-care, promote active living and contribute to the development of research projects.

Our aim is to demonstrate how care plans can achieve behavioural change in these people and a greater commitment to their own health status, in addition to promoting active living and improving adherence to their treatments.

This is how patient organisations for rare lung diseases should promote and collaborate on these types of projects. If you want to read more about previous articles, you can do so here:

Rare lung diseases
Solutions to rare lung diseases

Last updated on 29 November, 2019