On World Rare Disease Day, from #HappyAirCommunity we want to send a message from our ambassador Arran Strong. Arran, started surfing when he was 6 years old and now he is a professional athlete, lives with Alpha-1, a genetic condition which can cause serious lung or liver disease and complex health issues. AAT protects [...]
Our HappyAir Ambassador, Arran Strong, is sharing stories with Alphas around the world. In this episode, Karen Skalvöll tells us her story about challenging lung disease and Alpha-1. Come and meet them both in the upcoming Alpha-1 Global Congress, 3-6 April, 2019 in Dubrovnik, Croatia.
Alpha-1 Global Congress, Croatia 3-6 April. The young patient’s voice with our HappyAir Ambassador Arran Strong from Lovexair was a hit. How great it is for young people to begin to speak out about how they continue to live their lives and build their dreams, even when they have a rare disease which affects lung, [...]
10 March 2019, a beautiful sunny day on Carcavelos Beach, Lisbon. A young Portuguese professional surf community & Lombos School helped Lovexair and our Happyair Ambassador, Arran Strong, put on an awareness event for World Rare Disease Day. The event consisted of surf and yoga therapy. The aim was the promotion of lung health, physical [...]