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Results of the HappyAir M-Health program in patients with COPD

  • Results of the study confirm that using the m-health Happyair program improves adherence in patients with COPD and their perception about following the program is very positive. Healthcare professionals demonstrate their satisfaction and are also positive about the benefits for patients enrolled in the program.

COPD, Chronic Pulmonary Obstructive Disease affects more than 2 million people in Spain. According to the World Health Organization, WHO, COPD is the 4th leading cause of death worldwide and it is estimated that by 2030: 7,8% of deaths worldwide will be caused by COPD.

The study, “ The results  of tele- monitoring using m-health  in adherence to an integral care plan, including physical activity and respiratory therapy in patients with COPD” carried out by the Lovexair Foundation: evaluates the disease from different perspectives: on the one hand, the benefits to respiratory disease patients who are enrolled in a comprehensive digital healthcare program, on the other hand ,the benefits for healthcare professionals with access to resources supplied by the Lovexair Foundation , as ICTs and support services of trained educators who work with patients and follow their disease-management program.

The m-health program is an integral part of the Happyair initiative developed by the Lovexair Foundation and registered in the EIP AHA (European Innovative Partnership for Active Healthy Ageing, Action Group B3 for Integrated Care ).

The first seeds of this project were developed more than 6 years ago by Lovexair as part of our key mission to provide evidence-based and meaningful solutions, to attend to Society’s needs where the impact of ageing populations affected by chronic disease is becoming an enormous burden to our future well-being, health and care as well as productivity.

We have developed the m-health program in direct answer to patients, care-givers and families demands to have access to better resources for  self-management , receive pulmonary rehabilitation or suitable exercise in order to have better quality of life,  inspite of facing fewer resources available in healthcare systems or  in low-cost environments in developing countries. We also address patient’s desires to be guided by trained healthcare professionals in their own environment.

The clinical intervention study was carried out between 2016-2017 in 3 leading hospitals in Madrid (Hospital Clínico San Carlos, Hospital Universitario Doce de Octubre, y Hospital Universitario La Princesa) where a multidisciplinary team of healthcare professionals from each hospital, collaborated with Lovexair. Patient volunteers were recruited with COPD  at Grade II, III and IV GOLD standards and an average age of 69+, in a clinically stable condition. A third of the participants were oxygen users.

The Foundation developed the intervention model under the guidance of a number of expert healthcare professionals. We were able to apply a basic protocol to introduce a lung-care and exercise plan but were not allowed any education on disease management, by the ethical committee to verify the value of tele-care support and the app as a daily reporting tool for self-care on its own basis.

The ICT resources (smartphones, devices, app and clinical platform)  and technology necessary was supplied and managed by the Foundation with their own personnel and a third party e-health provider. 

The patients were separated into two groups: control and intervention. Both groups followed an 8 week pulmonary rehabilitation program in their own hospital setting. When the rehabilitation was completed the intervention group followed the Happyair m-health Integrated Care program over the next 10 month period .

This program included using an ICT application, O2 saturation device and connection to Googlefit  to monitor exercise or manual recording of data capture.

Patients made a daily note of different aspects of lung-care such as use if rescue inhaler, physical exercise, warning signs on certain symptoms leading to illness. Patients had access to a Lovexair educator specialised in respiratory health who could guide and monitor the patients progress and help with any technical difficulties or issues which arise.

Each group underwent 4 evaluations : at the outset, after pulmonary rehabilitation and at 8 and 12 months of starting the study.

The results from the 4 evaluations indicate that the patients that used the m-health program improved their adherence and their perception about using the program is very positive compared to the control group ( no m-health or educator support).

Both patients and healthcare professionals who have collaborated in the study highlight two key aspects which have been demonstrated to have a  positive influence on their self-care capabilities:

  1. Adherence to their overrall treatment and disease-management is high

  2. Their perception about using the m-health Happyair  program and its benefits, is very positive.

The study was closed in June 2017 with patients, family and healthcare professionals being invited to thank them for their participation, award them a diploma for having completed a self-care Happyair program, over the course of a year and to gain insights into their opinions about the service.

Their feedback was invaluable to our development plan and has enabled us at  Lovexair to capture suggestions for improvements which we are introducing into phase II. Some of those comments are available on Lovexair YouTube’s Channel.

The study has been presented at the ERS Congress, Milan 2017 and partial results were presented as poster at  the COPD Conference, Chicago, 2017 and published as an abstract in the COPD Journal.

The confidence and security that patients gain in this relationship ,demonstrates the value we can generate which is evidence-based, in our m-health program  delivery model. This provides a sound starting point to build on in phase II Happyair .

Happyair 2017-2018

We are now in phase II production of our care model , ICT resources and its deployment.

  1. We are working on identifying phase II financing to bring in improvements and build inhouse resources in ICTs to manage this system from the Foundation.
  2. We are developing a digital health & care training program for healthcare professionals to build a network of educators. This involves collaborating with partners at  key institutions , bringing in individual expertise and working with professional colleges or Universities on the development of our educational materials, course timeline and future availability. This means we can attend to patients and caregivers with appropriate educational materials and know-how for developing new skill-sets in using or understanding digital health tools, chronic disease, active lifestyles and motivation or  behavioural issues in self-care. 
  3. To deploy these services and develop our resource network we are already identifying partners such as SMEs specialised in ICTs, institutions, colleges, healthcare authorities and business where their is a shared interest in providing low-cost , co-financed services to those people affected by chronic and respiratory disease in the era of a silver economy.

The model needs to be sustainable and involves all stakeholders. We have a shared opportunity. As a Foundation we can facilitate  bringing people together in relationships to drive the process forward and to make these solutions available widely, for more users: healthcare professionals, patients and care-givers in new settings.

Phase II Development:

a) A clinical and administrative CRM platform to manage users:

To visualise and analyse patients’ progress from the perspective of the healthcare professional who monitors or tracks the patient journey, as an educator or collaborating doctor, psychologist or researcher.

b) An online application available via web where the patient can:

  • easily record and follow his/her care plan on a daily basis
  • see his/her own progress and how they are managing their own goals on physical activity, social life or breaking  a smoking habit.
  • find educational support about their disease or care / activity aspects.
  • consult their educator when they require specific guidance
  • share simple information with their doctors about their progress
  • register and attend events or activities online or offline, depending on availability in their region.

The Lovexair Foundations’ mission is to provide valuable and meaningful resources to patients, family-members and healthcare professionals: so that together we can improve our knowledge and empowerment.

This is especially important in the era of digital health and care ,where citizens now need to learn and understand how to better manage their health . They need both resources and education in order to achieve this transitional process, to take responsibility in this role and have the capabilities to lead better lives.

Última actualización realizada el 17 septiembre, 2019

2019-09-17T12:26:20+02:00

La Fundación Lovexair presenta los resultados del programa M-Salud HappyAir en pacientes con EPOC

  • Los resultados del estudio confirman que la utilización del programa m-salud HappyAir contribuye a mejorar la adherencia del paciente con EPOC e incrementa la percepción que tiene el paciente  sobre su estado de salud.

La EPOC, enfermedad pulmonar obstructiva crónica, afecta en España a más de dos millones de personas. Según la Organización Mundial de la Salud (OMS), la EPOC es la cuarta causa de muerte en el mundo, y se prevé que en 2030, el 7,8% de los fallecimientos serán producidos por esta enfermedad. El estudio “Efecto de la monitorización mediante m-health sobre la adherencia a un plan de cuidados integrales, actividad física y fisioterapia respiratoria en pacientes con EPOC”, realizado por la Fundación Lovexair, evalúa la situación de la enfermedad desde distintos ámbitos: por un lado, analiza el beneficio que dicho programa de salud digital tiene para el paciente respiratorio; por otro lado, evalúa las ventajas que también ofrece al profesional sanitario, que consigue un mayor seguimiento y control de los pacientes.

El programa m-salud Happyair forma parte del proyecto Happyair desarrollado por la Fundación Lovexair y registrado en el EIP AHA (European Innovative Partnership for Active Healthy Ageing, dentro del grupo de acción B3 de Cuidados Integrales).

Esta iniciativa, desarrollada por Lovexair desde hace 6 años, da respuesta a uno de los principales objetivos de la Fundación, que consiste en desarrollar programas dirigidos a mejorar la calidad de vida de la ciudadanía. El incremento de la esperanza de vida, y la baja tasa de natalidad originan un crecimiento acelerado de personas mayores y, en consecuencia, un aumento de las enfermedades crónicas. Gracias al desarrollo de programas como HappyAir se proporcionan servicios de salud que complementan la actual estructura sanitaria.

Este estudio se llevó a cabo entre 2016 y 2017 y se realizó en tres hospitales de Madrid  (Hospital Clínico San Carlos, Hospital Universitario Doce de Octubre, y Hospital Universitario La Princesa). El  estudio contó con la participación de equipos multidisciplinares sanitarios y pacientes voluntariados con EPOC grado II, III y IV en la escala GOLD, con una edad promedio de 69 años, y en situación clínica estable. Una tercera parte de los pacientes eran usuarios de oxigenoterapia.

 

Los pacientes se clasificaron en dos grupos: un grupo de control y un grupo de intervención. De manera previa, ambos grupos realizaron un programa de rehabilitación pulmonar durante 8 semanas en sus respectivos hospitales. Al finalizar la rehabilitación, durante 10 meses, solamente el grupo de intervención siguió con el Programa de Cuidados Integrales HappyAir. Este programa incluyó la utilización de una aplicación en la que los pacientes registraban de forma diaria datos de interés relacionados con su enfermedad: toma de medicación, actividad física, valoración de los signos de alerta ante posibles recaídas, etc. A su vez, este programa contó con el apoyo de un educador HappyAir, profesional sanitario especializado en salud respiratoria, que guió y monitorizó la evolución del paciente.

En ambos grupos se llevaron a cabo cuatro evaluaciones: al comienzo del estudio, tras la realización del programa de rehabilitación pulmonar, y a los 8 y 12 meses del inicio del estudio.

Los resultados de las 4 evaluaciones indican que, los pacientes que han utilizado el programa m-salud HappyAir mejoran su adherencia al tratamiento, en relación con aquellos pacientes del grupo de control (pacientes que no se han beneficiado del programa m-salud).

En este sentido puede afirmarse que, gracias a este estudio, tanto los pacientes como los investigadores que han participado en el estudio, han identificado dos claves que quedan demostradas gracias a la utilización del Programa de Cuidados Integrales HappyAir:

  1. Refuerza la adherencia del paciente al tratamiento
  2. Aumenta la percepción que el paciente tiene sobre su estado de salud

El cierre del estudio contó con la participación de pacientes, familiares y profesionales sanitarios del entorno hospitalario. Tanto los profesionales sanitarios como los pacientes han mostrado su satisfacción y agradecimiento por haber participado en el programa. Asimismo, señalan la importancia de la digitalización en el campo sanitario, ya que estas herramientas satisfacen las demandas de la población y garantizan el empoderamiento del paciente. A través del  Canal Lovexair en YouTube puede conocer los testimonios de  pacientes y profesionales sanitarios que participaron en el estudio.

El estudio ha sido presentado oralmente en el Congreso ERS, Milano 2017 y los resultados parciales presentados como poster  en la Conferencia EPOC, Chicalgo 2017 y publicado como abstract en el COPD Journal.

Gracias a los resultados obtenidos, la Fundación Lovexair trabaja actualmente en una II Fase de desarrollo del programa HappyAir con el fin de implementar mejoras que den respuesta a las necesidades del paciente.

Happyair 2017-2018

Por consecuencia estamos trabajando en La Fase II.

  1. Identificar una ronda de financiación para mejoras en el desarrollo de los recursos tecnólogicos propios de la Fundación
  2. Para crear y formar una red de educadores con la colaboración de instituciones y redes profesionales que necesitan estar formados en nuevas habilidades para atender a pacientes crónicas, vida activa y salud digital
  3. Para desplegar estos servicios e implantar nuestros recursos con colaboradores y partners que desean ofrecer soluciones de bajo coste para responder al impacto de enfermedades crónicas y vida saludable con nuestra organización de manera sostenible

Fase II desarrollo:

a) Una plataforma de monitorización clínica y CRM :
Desde la perspectiva del profesional sanitario se podrá visualizar y analizar el progreso del paciente.

b) Un programa disponible vía web donde el paciente puede:

  • Seguir y ver su progreso a la hora de cumplir sus objetivos relacionados con: la actividad física, cesación tabáquica, etc.
  • Completar diariamente su plan de cuidados.
  • Consultar información relacionada con su enfermedad.
  • Preguntar a su educador (profesional sanitario especializado en salud respiratoria).
  • Informar a su médico sobre su progreso y evolución.
  • Asistir a eventos y actividades (online/offline) que se lleven a cabo en su localidad

En definitiva, la Fundación tiene la finalidad de proporcionar al paciente, familiar y profesional sanitario recursos con el fin de satisfacer sus demandas. En la actualidad, en el campo sanitario se ofrecen mejores servicios gracias a la aplicación de las tecnologías. A su vez, los pacientes también reclaman soluciones digitales para el cuidado de su salud.

Última actualización realizada el 12 septiembre, 2019

2019-09-12T11:00:21+02:00
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